Resources

We invite you to take a look at the following links if you are interested in learning more about genetic counselling or organizations dedicated to those touched by rare and/or hereditary conditions.

Canadian Organization for Rare Disorders (CORD)

CORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.

 

The Corporation for research and action on hereditary diseases

The Corporation for research and action on hereditary diseases is a regional community organisation whose aim is to prevent hereditary disease by relying on information, awareness and education. The organisation has been active in the Saguenay Lac Saint-Jean region since 1980 and provides the population with important information regarding heredity, human genetics and hereditary diseases.

 

Lexigene – Translation tool for genetic counselling

Lexigene is the English-French genetic counselling lexicon funded by the Canadian Association of Genetic Counsellors that was launched in 2011.

 

Orphanet Canada

The Orphanet Canada web site presents news, events and documents of national significance on rare diseases and orphan drugs.

 

Quebec Coalition for Rare Disorders

The Quebec Coalition for Rare Disorders (QCRD) unites patient associations for rare diseases, individuals or family members of individuals affected by a rare disease, and other individuals interested in the cause of rare diseases. Among other things, the QCRD offers a Rare Disease Information and Resource Center for individuals affected by a rare and orphan disease, as well as their families and health professionals, that operates via the internet and by phone.

 

Canadian Association of Genetic Counsellors (CAGC)

The mission of the Canadian Association of Genetic Counsellors is to promote high standards of practice, encourage professional growth and increase public awareness of the genetic counselling profession in Canada.

 

National Society of Genetic Counselors (NSGC)

The National Society of Genetic Counselors (NSGC) is an American organisation that promotes the professional interests of genetic counselors and provides a network for professional communications. Local and national continuing education opportunities and the discussion of all issues relevant to human genetics and the genetic counseling profession are an integral part of belonging to the NSGC.

 

American Board of Genetic Counselors (ABGC)

The American Board of Genetic Counseling (ABGC) is the credentialing organization for the genetic counseling profession in the United States and Canada. The ABGC certifies and recertifies qualified genetic counseling professionals. In this way the work of the ABGC protects the public and promotes the ongoing growth and development of the genetic counseling profession.